Steve is having his second brain surgery tomorrow. We're picking him up at 5:30 to go to the hospital for check in and an MRI and then surgery is scheduled for 8 a.m. They expect to be done around 1 p.m. The tumor is basically in the same place as last time, so this should be pretty similar. They'll likely keep him sedated and asleep for several days while he's on the ventilator and hopefully we won't have any of the same complications as before.
Please keep him in your thoughts tomorrow and send us any spare good karma!
Sunday, April 12, 2009
Thursday, April 2, 2009
Maybe the Grumpy Face was better.
So we finally were able to snap a picture of Peanut without his usual Grumpy Face. The result:
Saturday, March 28, 2009
Fletcher: One Month
I can't believe it's already been a whole month. I've been somebody's actual mother for a month! What an amazing adventure it's been. I have no idea what we did with all our time before we had a baby but every minute spent with him is an absolute joy. Yes, even the times when he's crying (which, so far, is thankfully not all that often). I've posted some more pictures in the Peanut Gallery so you can continue to see that he is indeed the cutest baby ever.
Our little Peanut is growing so fast - already over 8 lbs, which is great because he lost quite a bit of weight right after he was born and got down to 6 pounds something in the hospital. We are breastfeeding and have been on a schedule of about every three hours, but recently he's been wanting to eat as often as every 1 1/2 to 2 hours. The non-scary books say this is probably a growth spurt.
Breastfeeding is an adventure of its own. It took some doing to get started - as part of the larger birth story that I will someday relate, let me just say that I got very dehydrated in the hospital and that caused my milk to be sluggish which in turn caused the baby to lose a lot of weight and enormous frustration for both of us - but we seem to have gotten the hang of it. My Boppy pillow is fabulous and Mr. Fantastic and I seem to have learned Fletcher's hungry cues. This is useful because if we wait too long, our happy little baby will go from precious snuffling and lip smacking to wailing Defcon 5 BOOB BOOB MUST HAVE BOOB NOW in the blink of an eye.
There is nothing like hearing your baby cry from hunger to make you feel like a giant flaming failure as a parent. A week or two ago, I was driving him home from my mother-in-law's close to feeding time and he made the transition to Defcon 5 on the way. It was the most horrible, awful feeling, driving with Fletch wailing in the back seat, knowing that I'd be home in 15 minutes and would be able to feed him then but that he was hungry NOW and I couldn't do anything about it. He started crying and then I started crying and trying to reach into the back seat to comfort him...ugh, it was awful. And I felt so horrible, like he was going to hold it against me or think I was starving him on purpose. Of course I know that he won't even remember, let alone think the world is a terrible place where his mother abandoned him to STARVE TO DEATH, but it's hard not to feel that way in the face of your baby's pitiful cries.
He cried himself out and fell asleep after less than ten minutes, but it was the longest ten minutes of my life. And when I got him out of the back seat, I discovered that he'd cried so hard his hat fell off and I felt horrible all over again. Thankfully, we are mostly on top of keeping him fed, so we don't have a lot of Defcon 5 moments. I do still pretty much cry every time he cries and we can't fix it despite the fact that I know sometimes babies just cry and it's no reflection on us.
So the breastfeeding is going well, although I have started getting upper back aches from hauling around these enormous boobs. Seriously, I thought that at size 34 H, I was big before. Ha. Those boobs were a walk in the park compared to my boobs now. My boobs now are like giant porn star clown boobs. And yes, they are WAY bigger than Peanut's whole head. I don't know how he isn't scared of them, but instead, they are his most favorite place in the world. When he's eating and it's time to take him off the boob, he does this adorable little nom-nom-nom turtle mouth thing chasing after it and trying to get back on. I would video it for you but the video would also have to include a whole lot of my clown boob, which I am just not willing to share.
Mr. Fantastic is an awesome dad. He loves this kid so much I can't even tell you. Not that I expected any different, but I can't even explain how much it fills my heart to see them together. My heart goes all *meep-clench-eee* whenever Mr. F shows me our baby he's holding and says, "Isn't he the most beautiful thing you've ever seen?" I never knew I could love two people so much. My little family. ♥
Aside from being an awesome dad, Mr. F has also been an awesome hubby and unbelievable help to me. Breastfeeding really takes a lot out of you (or me, anyway - I am so tired and constantly eating, trying to keep up my energy and milk supply) so Mr. F basically does everything else. Makes me sandwiches, gets me drinks, helps clean up, does all the laundry, and so many other things, but especially, he is the Diaper King. Changes Peanut halfway through each feeding (which is like 8-10 times a day) and has become such an expert already that I call him Quick Draw. We both keep telling each other that we feel like the other is doing all the work. So far, I think we make a pretty good team.
We had bath time recently, which was a tag-team event and went extremely well - Peanut didn't cry once, despite some obvious dubiousness at the start.
Our little Peanut is growing so fast - already over 8 lbs, which is great because he lost quite a bit of weight right after he was born and got down to 6 pounds something in the hospital. We are breastfeeding and have been on a schedule of about every three hours, but recently he's been wanting to eat as often as every 1 1/2 to 2 hours. The non-scary books say this is probably a growth spurt.
Breastfeeding is an adventure of its own. It took some doing to get started - as part of the larger birth story that I will someday relate, let me just say that I got very dehydrated in the hospital and that caused my milk to be sluggish which in turn caused the baby to lose a lot of weight and enormous frustration for both of us - but we seem to have gotten the hang of it. My Boppy pillow is fabulous and Mr. Fantastic and I seem to have learned Fletcher's hungry cues. This is useful because if we wait too long, our happy little baby will go from precious snuffling and lip smacking to wailing Defcon 5 BOOB BOOB MUST HAVE BOOB NOW in the blink of an eye.
There is nothing like hearing your baby cry from hunger to make you feel like a giant flaming failure as a parent. A week or two ago, I was driving him home from my mother-in-law's close to feeding time and he made the transition to Defcon 5 on the way. It was the most horrible, awful feeling, driving with Fletch wailing in the back seat, knowing that I'd be home in 15 minutes and would be able to feed him then but that he was hungry NOW and I couldn't do anything about it. He started crying and then I started crying and trying to reach into the back seat to comfort him...ugh, it was awful. And I felt so horrible, like he was going to hold it against me or think I was starving him on purpose. Of course I know that he won't even remember, let alone think the world is a terrible place where his mother abandoned him to STARVE TO DEATH, but it's hard not to feel that way in the face of your baby's pitiful cries.
He cried himself out and fell asleep after less than ten minutes, but it was the longest ten minutes of my life. And when I got him out of the back seat, I discovered that he'd cried so hard his hat fell off and I felt horrible all over again. Thankfully, we are mostly on top of keeping him fed, so we don't have a lot of Defcon 5 moments. I do still pretty much cry every time he cries and we can't fix it despite the fact that I know sometimes babies just cry and it's no reflection on us.
So the breastfeeding is going well, although I have started getting upper back aches from hauling around these enormous boobs. Seriously, I thought that at size 34 H, I was big before. Ha. Those boobs were a walk in the park compared to my boobs now. My boobs now are like giant porn star clown boobs. And yes, they are WAY bigger than Peanut's whole head. I don't know how he isn't scared of them, but instead, they are his most favorite place in the world. When he's eating and it's time to take him off the boob, he does this adorable little nom-nom-nom turtle mouth thing chasing after it and trying to get back on. I would video it for you but the video would also have to include a whole lot of my clown boob, which I am just not willing to share.
Mr. Fantastic is an awesome dad. He loves this kid so much I can't even tell you. Not that I expected any different, but I can't even explain how much it fills my heart to see them together. My heart goes all *meep-clench-eee* whenever Mr. F shows me our baby he's holding and says, "Isn't he the most beautiful thing you've ever seen?" I never knew I could love two people so much. My little family. ♥
Aside from being an awesome dad, Mr. F has also been an awesome hubby and unbelievable help to me. Breastfeeding really takes a lot out of you (or me, anyway - I am so tired and constantly eating, trying to keep up my energy and milk supply) so Mr. F basically does everything else. Makes me sandwiches, gets me drinks, helps clean up, does all the laundry, and so many other things, but especially, he is the Diaper King. Changes Peanut halfway through each feeding (which is like 8-10 times a day) and has become such an expert already that I call him Quick Draw. We both keep telling each other that we feel like the other is doing all the work. So far, I think we make a pretty good team.
We had bath time recently, which was a tag-team event and went extremely well - Peanut didn't cry once, despite some obvious dubiousness at the start.
Peanut has achieved several of the milestones the book says he should or may be able to do by now, including gaining some head/neck control, focusing on a face, following an object, making noises other than crying, smiling and bringing his hands together in front of him. Unfortunately, we can't seem to get a picture of him smiling - the camera seems to promote Grumpy Face.
We did, however, get a photo of him with his hands together and discovered that this makes him look uncannily like Mr. Burns.
Mostly though, he's just about the cutest thing you ever saw.
♥♥♥
♥♥♥ Saturday, March 7, 2009
Mission Accomplished: The Peanut has landed!
Hooray! We finally welcomed Peanut to the world on Saturday, Feb 28 at 12:56 a.m., almost a whole week past the due date. Fletcher Steven Farley weighed 7 lbs 10 oz and is 21 inches long. And, incidentally, is the cutest baby ever. I have photographic evidence.
All of you who suggested my lower back ache was back labor were indeed correct. At some point, Peanut flipped himself face up (otherwise known as "sunny side up"), which puts lots of pressure on your lower back and tailbone and hurts like the dickens. There was some minor drama during delivery, which if I ever have the energy again, I will tell you more about, but all in all, everything turned out well and we are both doing great.
Will check in more as Peanut allows!
All of you who suggested my lower back ache was back labor were indeed correct. At some point, Peanut flipped himself face up (otherwise known as "sunny side up"), which puts lots of pressure on your lower back and tailbone and hurts like the dickens. There was some minor drama during delivery, which if I ever have the energy again, I will tell you more about, but all in all, everything turned out well and we are both doing great.Will check in more as Peanut allows!
Wednesday, February 25, 2009
Still here...still pregnant
Week 41
Hi! Yep, still pregnant. Had a dr. appt. on Monday, regular visit plus we went ahead and did the membrane sweep. I will not lie, it sucked. Somewhat painful and pretty unpleasant. Unfortunately, it doesn't appear to have done anything...usually if it's going to jumpstart labor, it will do so within 48 hours. So I guess me and Peanut are just not quite ready to part ways yet. Doesn't mean I'm not doing my best to evict him anyway!
I have been having lots of low back pain since then, and also what I think are contractions in my belly. But the stuff going on in front is nowhere near as painful as the low back pain, so I don't know what that really means. I was under the impression that if the baby is turned the right way (which Peanut supposedly is) then you don't have back labor, but that could be wishful thinking. The back pain usually goes away after a nice rub from Mr. F and the front pain tends to go away on its own. I'm guessing things are progressing and we are getting under way but I don't think we're too close yet. Who knows!
I'm scheduled for another appointment on Friday, where they'll do an ultrasound to check fluid levels, another NST and something called a biophysical profile, which I guess is part of the ultrasound.
They'll also want to talk about scheduling an induction, which they know I don't want to do but they don't like to let you go past 42 weeks. Today I am 40 weeks 3 days, so technically, I have until March 8 before I am 42 weeks. I'm sure they would like to schedule me the first week of March but I would like to put it off until the second. Steve has chemo the first week of March and I was sort of hoping not to be having the baby when he was feeling crappy. So if I could have the baby before the 3rd it would be great (hint hint, Peanut!), if not, then I'd like to wait until the 8th when Steve will hopefully be feeling better after the chemo.
These last few days practically everyone I know has called or texted me (some of them multiple times) to see if I've had the baby (and possibly forgotten to let them know!) and I feel so bad when I have to tell them I have nothing to report yet. My doctor told me at the very beginning not to tell anyone my actual due date because everyone would start coming out of the woodwork wanting to know if I'd had the baby yet, and she wasn't kidding! It's sweet that everyone is so excited, but I really do feel kind of bad saying, nope, no baby...and no idea when, either.
Also, I have been advised by both my sister-in-law and Mummy Fantastic that we need to be having sex to get Peanut going and I had to tell them both we've tried to no avail. Also thus far unsuccessful: walking, swimming, bouncing, nipple stimulation, pineapple, red raspberry leaf tea, evening primrose oil, chinese food, bribery, pleading, threats. I am considering acupuncture at this point! (which I have actually done before - obviously not to induce labor - but I found it very relaxing, so it might not be a bad idea.)
So! Keep your fingers crossed that Peanut will see his way to joining us in the real world in the near future. Will keep you posted as always!
Hi! Yep, still pregnant. Had a dr. appt. on Monday, regular visit plus we went ahead and did the membrane sweep. I will not lie, it sucked. Somewhat painful and pretty unpleasant. Unfortunately, it doesn't appear to have done anything...usually if it's going to jumpstart labor, it will do so within 48 hours. So I guess me and Peanut are just not quite ready to part ways yet. Doesn't mean I'm not doing my best to evict him anyway!
I have been having lots of low back pain since then, and also what I think are contractions in my belly. But the stuff going on in front is nowhere near as painful as the low back pain, so I don't know what that really means. I was under the impression that if the baby is turned the right way (which Peanut supposedly is) then you don't have back labor, but that could be wishful thinking. The back pain usually goes away after a nice rub from Mr. F and the front pain tends to go away on its own. I'm guessing things are progressing and we are getting under way but I don't think we're too close yet. Who knows!
I'm scheduled for another appointment on Friday, where they'll do an ultrasound to check fluid levels, another NST and something called a biophysical profile, which I guess is part of the ultrasound.
They'll also want to talk about scheduling an induction, which they know I don't want to do but they don't like to let you go past 42 weeks. Today I am 40 weeks 3 days, so technically, I have until March 8 before I am 42 weeks. I'm sure they would like to schedule me the first week of March but I would like to put it off until the second. Steve has chemo the first week of March and I was sort of hoping not to be having the baby when he was feeling crappy. So if I could have the baby before the 3rd it would be great (hint hint, Peanut!), if not, then I'd like to wait until the 8th when Steve will hopefully be feeling better after the chemo.
These last few days practically everyone I know has called or texted me (some of them multiple times) to see if I've had the baby (and possibly forgotten to let them know!) and I feel so bad when I have to tell them I have nothing to report yet. My doctor told me at the very beginning not to tell anyone my actual due date because everyone would start coming out of the woodwork wanting to know if I'd had the baby yet, and she wasn't kidding! It's sweet that everyone is so excited, but I really do feel kind of bad saying, nope, no baby...and no idea when, either.
Also, I have been advised by both my sister-in-law and Mummy Fantastic that we need to be having sex to get Peanut going and I had to tell them both we've tried to no avail. Also thus far unsuccessful: walking, swimming, bouncing, nipple stimulation, pineapple, red raspberry leaf tea, evening primrose oil, chinese food, bribery, pleading, threats. I am considering acupuncture at this point! (which I have actually done before - obviously not to induce labor - but I found it very relaxing, so it might not be a bad idea.)
So! Keep your fingers crossed that Peanut will see his way to joining us in the real world in the near future. Will keep you posted as always!
Sunday, February 22, 2009
Dear Peanut:
Okay! Today is d-day. Or b-day, whatever. So really, ANY TIME now would be great. Especially if it means this back ache will go away. Plus, Mr. Fantastic says I can't be having you tomorrow because Tottenham v. Hull City is on. You know we wouldn't want Daddy to miss that. And you know, it would be totally awesome if you didn't make us wait until next week or anything. I'm just saying.
Dear Battlestar Galactica:
Yeah. Still watching but there're only 4 more episodes, so I might as well. But you continue to be mysterious and confusing and a whole lotta work for not much reward. Maybe we're just not right for each other...maybe I'm too old and unhip to understand your depths. Maybe some people like having to figure you out, but that's not me. I watch t.v. so I don't have to think.
Dear Stargate Atlantis:
Oh, I miss you. My Friday nights will never be the same. Yes, there are other things I can watch, but they're not like you. Those things will never replace you; they take too much work. You were easy to love, with your pretty and your splodey and your shiny stories that nobody ever needed to draw me any kind of chart to decipher.You will always have my heart.
Okay! Today is d-day. Or b-day, whatever. So really, ANY TIME now would be great. Especially if it means this back ache will go away. Plus, Mr. Fantastic says I can't be having you tomorrow because Tottenham v. Hull City is on. You know we wouldn't want Daddy to miss that. And you know, it would be totally awesome if you didn't make us wait until next week or anything. I'm just saying.
Dear Battlestar Galactica:
Yeah. Still watching but there're only 4 more episodes, so I might as well. But you continue to be mysterious and confusing and a whole lotta work for not much reward. Maybe we're just not right for each other...maybe I'm too old and unhip to understand your depths. Maybe some people like having to figure you out, but that's not me. I watch t.v. so I don't have to think.
Dear Stargate Atlantis:
Oh, I miss you. My Friday nights will never be the same. Yes, there are other things I can watch, but they're not like you. Those things will never replace you; they take too much work. You were easy to love, with your pretty and your splodey and your shiny stories that nobody ever needed to draw me any kind of chart to decipher.You will always have my heart.
Thursday, February 19, 2009
You know, when I was nineteen, Grandpa took me on a roller coaster... Up, down, up, down. Oh, what a ride! I always wanted to go again. You know, it was just so interesting to me that a ride could make me so frightened, so scared, so sick, so excited, and so thrilled all together! Some didn't like it. They went on the merry-go-round. That just goes around. Nothing. I like the roller coaster. You get more out of it.
We found out yesterday that my brother's surgery is being postponed. The doctors have agreed they want to give the chemotherapy more time to work on the lung tumor, so instead of going ahead with the brain surgery, they are going to do at least one more round of the chemo instead. The next round is scheduled for the first week of March - they were originally scheduled to be every three weeks.
Steve is feeling much better physically and is in much better spirits with this news. I, of course, am having mixed feelings. On the one hand, I worry that we're not moving fast enough on the brain, or what exactly this means about the lung tumor. I have to keep reminding myself that they don't want to go in surgically to take care of the lung tumor because it can and usually will leave lots of bad cells roaming around in there. It's actually better and more effective to try and kill it all with the chemo instead.
But I'm also glad because putting off the surgery gives me some time to have this baby. Apart from hoping that Steve will not actually be in the hospital when I deliver, it's crossed both our minds that there's a possibility that he might not come out of the surgery okay or at all. He said to me last night that he's glad they're putting off the surgery so he'll have a chance to at least meet my baby. They've given us no reason right now to expect the worst, and it breaks my heart to even think about it, but I can't help it. I do worry about how much longer we'll have Steve with us. I want him to have as much time as possible with his nephew.
I'm doing my best not to stress and focus instead on Peanut. Of course, being 39 weeks and 4 days pregnant, this is its own source of stress. I am so ready to have this baby and he seems to be perfectly content to keep percolating. I'm due in 3 days, but it's average for first-time moms to go over past their due date by 7-10 days. So even though Mr. Fantastic is convinced that I'm having the baby ON Sunday, I am not expecting that to happen.
I had my checkup with Dr. O on Tuesday and there was no change from last time. She asked if I wanted her to sweep my membranes, which I didn't want to do yet, and also about getting an induction scheduled for once I hit 41 weeks, which I REALLY don't want to do. So I told her I'd consider doing the sweep for next appointment and we could talk about the induction then too. I'm actually scheduled for two appointments next week - Monday for my usual checkup and then Friday they'll do an ultrasound, another NST and a biophysical profile. All this is just to make sure things are still going okay in there.
I don't want to be pressured into interventions that I don't want to do, such as an induction or the membrane sweep. I am willing to wait until 42 weeks before we start interfering, whereas the doctors don't like to wait past 41 weeks. But Dr. O just happens to be on vacation again next week, so I am seeing two of her colleagues on Mon and Fri, which I think will make it easier for me to put off scheduling the induction. I may agree to the sweep, though. It only works about half the time and carries a risk of breaking your water (something I want to avoid as long as possible), but Mr. F and I have discussed and he thinks I should consider it. I'm still thinking about it. I am anxious to get the ball rolling, and the sweep, if it works, could help avoid induction, so it's worth considering.
In the mean time, I am doing all the "natural" things I can to help get things started - eating pineapple, drinking red raspberry leaf tea and some other things. None of it may actually work, but if it does, yay! Of course, will keep everyone posted as things progress on both the baby and the brother fronts.
We found out yesterday that my brother's surgery is being postponed. The doctors have agreed they want to give the chemotherapy more time to work on the lung tumor, so instead of going ahead with the brain surgery, they are going to do at least one more round of the chemo instead. The next round is scheduled for the first week of March - they were originally scheduled to be every three weeks.
Steve is feeling much better physically and is in much better spirits with this news. I, of course, am having mixed feelings. On the one hand, I worry that we're not moving fast enough on the brain, or what exactly this means about the lung tumor. I have to keep reminding myself that they don't want to go in surgically to take care of the lung tumor because it can and usually will leave lots of bad cells roaming around in there. It's actually better and more effective to try and kill it all with the chemo instead.
But I'm also glad because putting off the surgery gives me some time to have this baby. Apart from hoping that Steve will not actually be in the hospital when I deliver, it's crossed both our minds that there's a possibility that he might not come out of the surgery okay or at all. He said to me last night that he's glad they're putting off the surgery so he'll have a chance to at least meet my baby. They've given us no reason right now to expect the worst, and it breaks my heart to even think about it, but I can't help it. I do worry about how much longer we'll have Steve with us. I want him to have as much time as possible with his nephew.
I'm doing my best not to stress and focus instead on Peanut. Of course, being 39 weeks and 4 days pregnant, this is its own source of stress. I am so ready to have this baby and he seems to be perfectly content to keep percolating. I'm due in 3 days, but it's average for first-time moms to go over past their due date by 7-10 days. So even though Mr. Fantastic is convinced that I'm having the baby ON Sunday, I am not expecting that to happen.
I had my checkup with Dr. O on Tuesday and there was no change from last time. She asked if I wanted her to sweep my membranes, which I didn't want to do yet, and also about getting an induction scheduled for once I hit 41 weeks, which I REALLY don't want to do. So I told her I'd consider doing the sweep for next appointment and we could talk about the induction then too. I'm actually scheduled for two appointments next week - Monday for my usual checkup and then Friday they'll do an ultrasound, another NST and a biophysical profile. All this is just to make sure things are still going okay in there.
I don't want to be pressured into interventions that I don't want to do, such as an induction or the membrane sweep. I am willing to wait until 42 weeks before we start interfering, whereas the doctors don't like to wait past 41 weeks. But Dr. O just happens to be on vacation again next week, so I am seeing two of her colleagues on Mon and Fri, which I think will make it easier for me to put off scheduling the induction. I may agree to the sweep, though. It only works about half the time and carries a risk of breaking your water (something I want to avoid as long as possible), but Mr. F and I have discussed and he thinks I should consider it. I'm still thinking about it. I am anxious to get the ball rolling, and the sweep, if it works, could help avoid induction, so it's worth considering.
In the mean time, I am doing all the "natural" things I can to help get things started - eating pineapple, drinking red raspberry leaf tea and some other things. None of it may actually work, but if it does, yay! Of course, will keep everyone posted as things progress on both the baby and the brother fronts.
Monday, February 16, 2009
Oh, television.
Dear Heroes:
It was this close...we were SO over. I was totally breaking up with you tonight and then you went and gave me an awesome last two minutes and now I can't break up with you until I find out what happens with HRG next week. Consider your execution stayed. For now.
Dear Battlestar Galactica:
Look, I still love you. But I just don't understand you anymore. I feel like I know about a quarter of what's going on with you. Is there some sort guidebook or manual that would help me read between the lines better? I'm not going anywhere, I just wish I knew more about you. Why must you be so cryptic? Why won't you let me in?
It was this close...we were SO over. I was totally breaking up with you tonight and then you went and gave me an awesome last two minutes and now I can't break up with you until I find out what happens with HRG next week. Consider your execution stayed. For now.
Dear Battlestar Galactica:
Look, I still love you. But I just don't understand you anymore. I feel like I know about a quarter of what's going on with you. Is there some sort guidebook or manual that would help me read between the lines better? I'm not going anywhere, I just wish I knew more about you. Why must you be so cryptic? Why won't you let me in?
Friday, February 13, 2009
Update on my brother
Well, we finally have a plan for my brother. First, he started chemo on Tuesday. Last time he was on something called Temodar, which was a pill he took for five days every month. This time it's Taxol, which is a more traditional chemotherapy that required him to go to the oncologist and get an IV infusion. He's supposed to do this every three weeks.
Last time the Temodar didn't have many of your traditional side effects. His hair got a little mangy and he felt pretty run down the week he was taking it, but in general he tolerated it pretty well. The Taxol this time is already taking much more of a toll on him. Although he swears his breathing is already better, it's making him feel terrible otherwise. The big thing is muscle and joint pain, very much like growing pains. The medication spurs bone marrow growth and so you get aches and pains from that. He feels run down and is alternating between chills and being too hot and has no appetite.
Second, on top of feeling crummy, he got word today that the gamma knife procedure is out. They have scheduled him for regular open brain surgery the afternoon of 2/20 to remove the tumor that's there. He'll be at PSL, the same hospital as last time, with surgery done by Dr. Lamond, who also did the last one.
The reason they can't do the gamma knife is because this is a melanoma we're dealing with, and it doesn't respond well to the gamma knife, so this is the only way. Steve is really bummed about it. He's had such a hard time in the hospital - it seems like something else always goes wrong when he's in there and he ends up staying longer than they originally told him. He'll probably still be in the hospital by the time he's supposed to do the next round of chemo, so I imagine they'll be postponing that until he's more recovered from the surgery.
We went over to see him this afternoon for just a few minutes - we brought him some prescriptions he needed and some other sundry items that he's just been too wiped out to go to the grocery store and pick up. We didn't stay because Mr. F has such a bad cold and we didn't want to get Steve any sicker with his immune system as compromised as it is right now. Poor guy just seems so down - I'm sure he's feeling pretty awful emotionally as well as all the chemo side effects. When you feel bad physically, that affects you mentally, and then to get the news that he's going to have to have the surgery, in a week no less - well, I'm sure he's about as down as he gets.
I am doing my best to keep upbeat and not worry so much about him. I hate to be going through all this again, especially knowing that I won't be able to care for him like I did last time. I just have to keep my spirits up and know that we will get through it. As always, good thoughts and karma sent our way are always appreciated.
Last time the Temodar didn't have many of your traditional side effects. His hair got a little mangy and he felt pretty run down the week he was taking it, but in general he tolerated it pretty well. The Taxol this time is already taking much more of a toll on him. Although he swears his breathing is already better, it's making him feel terrible otherwise. The big thing is muscle and joint pain, very much like growing pains. The medication spurs bone marrow growth and so you get aches and pains from that. He feels run down and is alternating between chills and being too hot and has no appetite.
Second, on top of feeling crummy, he got word today that the gamma knife procedure is out. They have scheduled him for regular open brain surgery the afternoon of 2/20 to remove the tumor that's there. He'll be at PSL, the same hospital as last time, with surgery done by Dr. Lamond, who also did the last one.
The reason they can't do the gamma knife is because this is a melanoma we're dealing with, and it doesn't respond well to the gamma knife, so this is the only way. Steve is really bummed about it. He's had such a hard time in the hospital - it seems like something else always goes wrong when he's in there and he ends up staying longer than they originally told him. He'll probably still be in the hospital by the time he's supposed to do the next round of chemo, so I imagine they'll be postponing that until he's more recovered from the surgery.
We went over to see him this afternoon for just a few minutes - we brought him some prescriptions he needed and some other sundry items that he's just been too wiped out to go to the grocery store and pick up. We didn't stay because Mr. F has such a bad cold and we didn't want to get Steve any sicker with his immune system as compromised as it is right now. Poor guy just seems so down - I'm sure he's feeling pretty awful emotionally as well as all the chemo side effects. When you feel bad physically, that affects you mentally, and then to get the news that he's going to have to have the surgery, in a week no less - well, I'm sure he's about as down as he gets.
I am doing my best to keep upbeat and not worry so much about him. I hate to be going through all this again, especially knowing that I won't be able to care for him like I did last time. I just have to keep my spirits up and know that we will get through it. As always, good thoughts and karma sent our way are always appreciated.
Wednesday, February 11, 2009
YUM.
I had a half a PBJ today and noticed that the grape jelly seemed different. This is because it was grape jam. I liked it more than jelly, I guess because of the texture - it was more spread-y and less slide-y than jelly. For some reason, we've always bought jelly; I have no idea how we ended up with jam this time, unless Mr. F bought it. Anyway, it got me to wondering, which do people prefer and why, and actually, what's the difference?
In other news, we ran some errands tonight which brought us in the vicinity of one of the two Colorado Krispy Kremes, which is way the hell over on the other side of town and not convenient to go to at all, and which is why I went to it once when it opened years and years ago and have never been back. Mr. F and I were both in the mood for something sweet, and the HOT NOW sign was on, so we thought we'd pop in for a doughnut.
Well, we walked in and the guy just handed us free, piping hot doughnuts, which I did not remember tasting this TOTALLY AWESOME when I had one a million years ago. Man, they get you with that "first one's free," because we ended up buying a dozen to go (one of which was eaten on the way home and NOT BY THE PREGNANT WOMAN.)
In conclusion, YUM.
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